Dementia Organisations

This groups aims to help people to discover information about organisations, whether they are local or national, and to discover how they may be able to help.

‘Making a Difference to Dementia’ nursing vision and strategy launched

The Department of Health has launched a new nursing vision and strategy for dementia care at the Healthcare Innovation Expo. It makes clear that every nurse can make a difference to the care of people with dementia.

This new resource will support the Prime Minister’s Dementia Challenge by:

raising the profile of the wider nursing contribution to dementia care
describing what is expected of all nurses to meet the level and quality of care expected in all care settings.

DH continues:
http://www.dh.gov.uk/health/2013/03/dementia-nursing/

New survey to gather views of carers of people with dementia

The following request comes from Carers Trust:

We are inviting any person who cares for someone with dementia to complete our survey — part of a new research project to help us understand this group’s needs and improve future services for them.

The survey coincides with a dementia roundtable event hosted today (7th March) by Carers Trust and Alzheimer’s Society and attended by Carers Trust President HRH The Princess Royal.

A strong message from the event was that despite ever-increasing demands, carers for people with dementia feel strongly that their needs are not being recognised.

Cheshire East - Healthwatch

Use your voice to improve local health & social care services in Cheshire East by joining Healthwatch. You may want to help sign-post people to appropriate services, keep up-to-date with recent healthcare developments, or voice your opinion on board meetings.

Email healthwatchce@cvsce.org.uk for further information

Rally Round

Organise jobs and helpers…FREE resource
If someone is frail, living with dementia, recovering from cancer or a stroke or simply 'off their legs' for a while Rally Round can help…

Living with dementia magazine March 2013

Alzheimer's Society monthly magazine available now via Pdf download.

http://alzheimers.org.uk/site/scripts/download_info.php?fileID=1631

Alzheimer’s Sufferers May Function Better With Less Visual Clutter

Psychologists at the University of Toronto and the Georgia Institute of Technology — commonly known as Georgia Tech — have shown that an individual’s inability to recognize once-familiar faces and objects may have as much to do with difficulty perceiving their distinct features as it does with the capacity to recall from memory.

Full report via Dementia Today:
http://www.dementiatoday.com/alzheimers-sufferers-may-function-better-wi...

Another chance to hear Shelagh Fogarty's debate..

Does the way we diagnose and care for people with dementia need to change? Another chance to hear Shelagh Fogarty's debate from earlier in the week.

Via BBC:
http://www.bbc.co.uk/iplayer/episode/b01r3x5h/Shelagh_Fogarty_17_02_2013/

Can you help develop a new Dementia Portal for the NHS NW?

Age UK Cheshire, on behalf of the North West NHS would like to know if any of our members are interested in trialling a new website which is currently under construction. Diane, your community manager, is meeting fortnightly with NHS to help develop this brand new facility for all living with dementia, and those that want to capture their own memories. If you feel you would like to help we are looking for volunteers willing to travel to the Hartford (Northwich office) on Friday 22nd February 10.30 - 12.00pm within our training suite.

Please let me know if you can help.

Thank you !

Annual Review - 2013 - Alzheimer's Research UK

Some facts and figures contained within the report:

We need more scientists working in dementia research. The field is dwarfed by other research areas.

Cancer - 28,062
Dementia - 4,061
Heart Disease - 6,433
Stroke - 4,784

Dementia has an impact on the UK economy of £23 billion per year.
That’s twice the cost of cancer, three times that of heart disease and four times the cost of stroke.

Dementia - £23bn
Cancer - £12bn
Heart Disease - £8bn
Stroke - £5bn

To read report in full, click the link below:

The #Dementia Challenge in the UK (infographic)

For the UK, the following are the facts:

163,000 cases of dementia are diagnosed in England and Wales each year.
£50 million is invested each year into dementia research annually by the government and charities.
50% of the cost of dementia in the UK is met by unpaid carers.
By 2025, 1 million people will be diagnosed with dementia.
The infographic below expands on these summary figures. It is well worth studying in detail.

See Senior Health Memo's link:
http://www.seniorhealthmemos.com/2013/01/the-dementia-challenge-in-the-u...

Dementia Debate - live tomorrow 1130hrs - via BBC News

Watch live coverage of MPs will take part in a general debate on dementia, on 10 January 2013 from about 11.30am.
The subject has been chosen by the Backbench Business Committee.

http://news.bbc.co.uk/democracylive/hi/house_of_commons/newsid_9782000/9...

Alzheimer's Society & Admiral Nurses Helpline's Christmas opening hours.

0300 222 1122

Monday 24 December 2012 - Open 9am - 1pm
Tuesday 25 December 2012 - Closed
Wednesday 26 December 2012 - Closed
Thursday 27 December 2012 - Open 9am - 5pm
Friday 28 December 2012 - Open 9am - 5pm
Saturday 29 December 2012 Closed
Sunday 30 December 2012 Closed
Monday 31 December 2012 - Open 9am - 5pm
Tuesday 1 January 2013 - Closed
Wednesday 2 January 2013 - Open 9am - 5pm

Pioneering Dementia research projects receive £22 million government boost

Twenty one pioneering research projects to boost dementia diagnosis rates and trial ground breaking treatments have been selected to receive a share of £22million of Government funding, Health Secretary Jeremy Hunt announced today.

Visiting pharmaceutical company Eli Lilly’s UK dementia research centre, the Health Secretary emphasised the crucial role of medical research in making breakthroughs in the prevention and treatment of dementia, whilst ensuring that research can help people with dementia live well with the condition today.

Department of Health continue:

Did you know?

NHS Choice “Find My Nearest”

Text ‘pharmacy’ to 64746 to receive three free texts detailing your nearest pharmacies or visit www.nhs.uk and look under NHS services.

Social Care as part of Acute Hospitals Call to Action (Webinar)

Dementia affects 820,000 people in the UK with this figure set to increase over the next few years. On October 15th the Dementia Action Alliance, in partnership with the NHS Institute for Innovation and Improvement, launched a Call to Action for the improvement of care for people with dementia in Acute Hospitals.

New NCPC leaflet on dementia: 'How would I know? What can I do?'

‘How would I know’ offers a range of top tips to help carers and health and care professionals identify whether someone with dementia may be in pain or distress, advice on what may be causing this and a range of possible solutions. It follows on from NCPC’s 2011 publication, Difficult Conversations for dementia, which provides advice on how to talk to people with dementia about their end of life wishes.

Download the leaflet here:
http://www.ncpc.org.uk/publication/how-would-I-know

Also added to useful links (Diane)

Getting it right for dementia patients

Much has been made of the poor care the elderly can sometimes experience at the hands of hospitals in the NHS.

Some of the most depressing cases involve dementia patients - as shown in the dossier of "appalling" cases highlighted by the Patients Association a few weeks ago.

BBC News continues:
http://www.bbc.co.uk/news/health-20548451

Send George Osborne a message to think again about cutting funding & putting dementia services at risk

Take action now
In his Autumn Statement, George Osborne cut funding to local councils – a decision that will put front line dementia services at risk. We’re asking for your help in sending a message to the Chancellor and asking him to think again.

http://e-activist.com/ea-action/action?ea.client.id=153&ea.campaign.id=1...

Dementia Research Impact Report (1990-2012) - Alzheimer's Society

Cause, cure, care and prevention of all forms of dementia.

"Over the past 20 years we have invested £20 million and completed more than 100 research projects. We have built knowledge of the causes of dementia, improved diagnosis, developed new treatments, provided better care and understood risk factors.

In the next five years we aim to significantly increase our investment in new research, supporting young researchers, translating research into services and creating a better world for people with dementia.

Download our report 'Cause, cure, care and prevention:

Dementia challenge progress report published

A progress report published today gives an update on the first 7 months of the Prime Minister’s Dementia Challenge. The report, ‘Delivering major improvements in dementia care and research by 2015: A report of progress’, outlines the aims, achievements and ambitions of the challenge’s 3 champion groups...

Dept of Health continues:
http://dementia.dh.gov.uk/dementia-challenge-progress-report-published/

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