Dementia Organisations

This groups aims to help people to discover information about organisations, whether they are local or national, and to discover how they may be able to help.

Another chance to hear Shelagh Fogarty's debate..

Does the way we diagnose and care for people with dementia need to change? Another chance to hear Shelagh Fogarty's debate from earlier in the week.

Via BBC:

Can you help develop a new Dementia Portal for the NHS NW?

Age UK Cheshire, on behalf of the North West NHS would like to know if any of our members are interested in trialling a new website which is currently under construction. Diane, your community manager, is meeting fortnightly with NHS to help develop this brand new facility for all living with dementia, and those that want to capture their own memories. If you feel you would like to help we are looking for volunteers willing to travel to the Hartford (Northwich office) on Friday 22nd February 10.30 - 12.00pm within our training suite.

Please let me know if you can help.

Thank you !

Annual Review - 2013 - Alzheimer's Research UK

Some facts and figures contained within the report:

We need more scientists working in dementia research. The field is dwarfed by other research areas.

Cancer - 28,062
Dementia - 4,061
Heart Disease - 6,433
Stroke - 4,784

Dementia has an impact on the UK economy of £23 billion per year.
That’s twice the cost of cancer, three times that of heart disease and four times the cost of stroke.

Dementia - £23bn
Cancer - £12bn
Heart Disease - £8bn
Stroke - £5bn

To read report in full, click the link below:

The #Dementia Challenge in the UK (infographic)

For the UK, the following are the facts:

163,000 cases of dementia are diagnosed in England and Wales each year.
£50 million is invested each year into dementia research annually by the government and charities.
50% of the cost of dementia in the UK is met by unpaid carers.
By 2025, 1 million people will be diagnosed with dementia.
The infographic below expands on these summary figures. It is well worth studying in detail.

See Senior Health Memo's link:

Dementia Debate - live tomorrow 1130hrs - via BBC News

Watch live coverage of MPs will take part in a general debate on dementia, on 10 January 2013 from about 11.30am.
The subject has been chosen by the Backbench Business Committee.

Alzheimer's Society & Admiral Nurses Helpline's Christmas opening hours.

0300 222 1122

Monday 24 December 2012 - Open 9am - 1pm
Tuesday 25 December 2012 - Closed
Wednesday 26 December 2012 - Closed
Thursday 27 December 2012 - Open 9am - 5pm
Friday 28 December 2012 - Open 9am - 5pm
Saturday 29 December 2012 Closed
Sunday 30 December 2012 Closed
Monday 31 December 2012 - Open 9am - 5pm
Tuesday 1 January 2013 - Closed
Wednesday 2 January 2013 - Open 9am - 5pm

Pioneering Dementia research projects receive £22 million government boost

Twenty one pioneering research projects to boost dementia diagnosis rates and trial ground breaking treatments have been selected to receive a share of £22million of Government funding, Health Secretary Jeremy Hunt announced today.

Visiting pharmaceutical company Eli Lilly’s UK dementia research centre, the Health Secretary emphasised the crucial role of medical research in making breakthroughs in the prevention and treatment of dementia, whilst ensuring that research can help people with dementia live well with the condition today.

Department of Health continue:

Did you know?

NHS Choice “Find My Nearest”

Text ‘pharmacy’ to 64746 to receive three free texts detailing your nearest pharmacies or visit and look under NHS services.

Social Care as part of Acute Hospitals Call to Action (Webinar)

Dementia affects 820,000 people in the UK with this figure set to increase over the next few years. On October 15th the Dementia Action Alliance, in partnership with the NHS Institute for Innovation and Improvement, launched a Call to Action for the improvement of care for people with dementia in Acute Hospitals.

New NCPC leaflet on dementia: 'How would I know? What can I do?'

‘How would I know’ offers a range of top tips to help carers and health and care professionals identify whether someone with dementia may be in pain or distress, advice on what may be causing this and a range of possible solutions. It follows on from NCPC’s 2011 publication, Difficult Conversations for dementia, which provides advice on how to talk to people with dementia about their end of life wishes.

Download the leaflet here:

Also added to useful links (Diane)

Getting it right for dementia patients

Much has been made of the poor care the elderly can sometimes experience at the hands of hospitals in the NHS.

Some of the most depressing cases involve dementia patients - as shown in the dossier of "appalling" cases highlighted by the Patients Association a few weeks ago.

BBC News continues:

Send George Osborne a message to think again about cutting funding & putting dementia services at risk

Take action now
In his Autumn Statement, George Osborne cut funding to local councils – a decision that will put front line dementia services at risk. We’re asking for your help in sending a message to the Chancellor and asking him to think again.

Dementia Research Impact Report (1990-2012) - Alzheimer's Society

Cause, cure, care and prevention of all forms of dementia.

"Over the past 20 years we have invested £20 million and completed more than 100 research projects. We have built knowledge of the causes of dementia, improved diagnosis, developed new treatments, provided better care and understood risk factors.

In the next five years we aim to significantly increase our investment in new research, supporting young researchers, translating research into services and creating a better world for people with dementia.

Download our report 'Cause, cure, care and prevention:

Dementia challenge progress report published

A progress report published today gives an update on the first 7 months of the Prime Minister’s Dementia Challenge. The report, ‘Delivering major improvements in dementia care and research by 2015: A report of progress’, outlines the aims, achievements and ambitions of the challenge’s 3 champion groups...

Dept of Health continues:

Local Dementia group meetings for November:

Monday 12th Nov - Riverside (Acton Bridge) Support Group - 1 - 2.30pm.

Tuesday 13th Nov - Community Church, Main Street, Frodhsam - 10.30am - 12 noon.

Monday 19th Nov - Bratts Department Store Cafe, Northwich - 10.30am - 12 noon.

Tuesday 20th Nov - Walking groups differing locations, contact Alzheimer's Society Northwich for latest venue - 1.00 - 3.00pm.

Wednesday 21st Nov - Salvation Army premises, Northwich - 2.15 - 4.15pm.

Please, if you know of any more then by all means add to this list.

'Huge worries' over end-of-life dementia care

Figures show that only 6% of dementia sufferers die at home, and a leading charity has urged that end-of-life care should be more effectively pre-planned to ensure their wishes are fulfilled.

Age UK continue their report:

Ensure possible B12 deficiency is considered when diagnosing dementia

The idea:

My name is Mrs Tanya Rostron, and I live in Cheshire, UK. I am a 45-year-old wife with 3 young children. For over 5 years I have been dying and the doctor did not know why!!!!

I was told i had ME & MS, Chronic Fatigue Syndrome and much more. A dermatologist spotted my red face and told me i had a B12 deficiency.

I am standing up for correct detection and treatment of B12 that does not fall under Government guidelines.

Read more from 'I can! I will!'

Alzheimer’s Society survey for people with dementia

The Alzheimer’s Society is carrying out a survey with people living with dementia. The answers to the survey will be used to inform the Society’s report ‘Dementia 2013’ and its work on dementia friendly communities.

To find out more, click the link below:

14th October - Happy Birthday DemenShare!

Happy birthday to us !

After 2 years we have; 460 members, 919 followers and 111 likes - THANK YOU to all our supporters....

The Reader Organisation

Get Into Reading groups are held in a range of settings including care homes, day centres, sheltered accommodation and community settings such as libraries and community centres.The read aloud model allows people to listen to a story or poem, join in with reading and talking, and also simply to have the space and time to relax, to think and to be. In care homes, residents talk about how poetry has had a positive effect on their mood or state of mind.