We all need a little break sometime. Kick back, relax and chat amongst yourselves in this group.
I know it's a long link, but the file is too large for this site (sorry) - as long as you can see the pamphlet I hoped you wouldn't mind...
People with dementia should be involved in decisions about their care and must be helped to maintain relationships and to participate in their communities, according to official guidance published today.
The Independent continue:
Maintain a social life
It’s easy to feel isolated and alone if you or someone you care for has dementia. Keeping in contact with others is good for people with dementia because it helps them to keep active and stimulated. Some people find it difficult to talk about their own or a family member’s dementia, or want to help but don’t know how.
NHS updated webpage:
Dementia is one of the first conditions to have been given social care quality standards by the renamed National Institute for Health and Care Excellence (NICE) today (Wednesday 3 April 2013).
The standards include a set of ten statements for care homes and services to follow in order to maintain the mental and physical health and wellbeing of people with dementia. The standards range from people with dementia being given choice and control in decisions affecting their care through to being enabled to take part in activities based on their individual interests.
THE scourge of dementia is now so prevalent health experts have produced a step-by-step guide to living with the crippling condition.
Tens of thousands of Alzheimer’s sufferers are being placed into care far too early and should be cared for at home, they said.
The situation is so bad that charity, Alzheimer’s Society took the unprecedented step of producing a guide for sufferers and their families.
Research showed the vast majority with the condition want to stay in the comfort of a loving home environment for as long as possible.
Dementia diagnosis rates are too low. Less than half of people living with dementia in the UK have a diagnosis. There are also big differences between diagnosis rates in different areas. At Alzheimer's Society, we are campaigning to make improvements in diagnosis rates.
Alzheimer's Society continue:
There's a place close to where we live that my husband, Howard, and I sometimes drive past on the bus.
Last year, when it was being refurbished, there was a board outside saying it would shortly be reopening as a private nursing home dedicated to dementia cases.
Every time he saw it, Howard would joke: ‘That’s where I’ll end up.’ And every time I would look away and change the subject.
Mail on-line continue the report that sadly strikes a chord with many..
Hi there, I'm a new member. My husband and I are carers, but work full-time. I'm really interested in finding a reliable care worker/company that can help look after a loved one with dementia during the day time (still in her own home and we wish to keep it that way for as long as is safely possible for her). If you have any good contacts/recommended carers in the South Cheshire area I'd really appreciate it.
Middle-aged men who physically act out their dreams while asleep are five times more likely to develop dementia, researchers have found.
Moving around, walking, talking or hitting out while asleep is the strongest predictor that a man will develop dementia with Lewy bodies – the second most common form of dementia in the elderly after Alzheimer's.
Another example would be unconsciously mimicking the action of holding a steering wheel while dreaming about driving a car.
Physically acting out dreams is a condition known as rapid eye movement (REM) sleep behaviour disorder.
My story began four years ago, maybe five when I think about it. George started doing strange things such as writing his hours in his work books with a pencil with a rubber on rather than a pen so he could rub out his mistakes, going in on the wrong days for his shifts on the railway, not knowing places I asked him to take me in the car that he had always known the way too. ..
Alzheimer's Society continues:
Nine years ago, at the age of 81, George Spencer had a massive stroke that left him in need of round-the-clock care.
He is unaware of his surroundings and unable to communicate; he is fed and medicated through a tube because he can’t swallow, is doubly incontinent, at high risk of pressure sores, and in constant danger of suffocating, choking, falling out of bed or slipping from his bath chair. He is largely bed-bound, and staff in his Suffolk nursing home use a hoist to move him.
The Telegraph take up the report:
From April, there will be changes to the GP contract to redirct £164 million funding from routine office functions such as record keeping, and going directly to caring and monitoring long term conditions and assessing patients at risk of dementia.
Support Solutions report:
As a person's dementia develops, it is likely to have an impact on some of their abilities but there will still be lots that the person can enjoy doing, both individually and with others. Maintaining existing skills, as far as possible, can give the person pleasure and boost their confidence. For this reason, it is important to help them find activities that they enjoy doing, and to continually adapt them to meet the person's changing interests and needs, throughout the illness.
People with dementia can lose their capacity to understand sights, sounds and words. And in some cases, the condition can also take away the meaning of flavors, a new study suggests.
Those with a specific type of dementia, called semantic dementia, have a harder time identifying flavors and determining whether a certain flavor combination would generally be considered unusual, the researchers found.
From across the Pond NBC news:
The following request comes from Carers Trust:
We are inviting any person who cares for someone with dementia to complete our survey — part of a new research project to help us understand this group’s needs and improve future services for them.
The survey coincides with a dementia roundtable event hosted today (7th March) by Carers Trust and Alzheimer’s Society and attended by Carers Trust President HRH The Princess Royal.
A strong message from the event was that despite ever-increasing demands, carers for people with dementia feel strongly that their needs are not being recognised.
A new guide to help people suffering with dementia and their carers deal with personal finances has been launched today.
The guide marks the start of an inititaive between Lloyds Banking Group and Alzheimer's Society and Alzheimer Scotland in which they plan to find ways to make the banking sector more 'dementia friendly'.
Today's launch is a first step by the partners to encourage people living with dementia, their family members and carers to think about what they need to do to future-proof the management of their finances.
Your Money take up the report here:
Use your voice to improve local health & social care services in Cheshire East by joining Healthwatch. You may want to help sign-post people to appropriate services, keep up-to-date with recent healthcare developments, or voice your opinion on board meetings.
Email firstname.lastname@example.org for further information
Organise jobs and helpers…FREE resource
If someone is frail, living with dementia, recovering from cancer or a stroke or simply 'off their legs' for a while Rally Round can help…
Alzheimer's Society monthly magazine available now via Pdf download.
Psychologists at the University of Toronto and the Georgia Institute of Technology — commonly known as Georgia Tech — have shown that an individual’s inability to recognize once-familiar faces and objects may have as much to do with difficulty perceiving their distinct features as it does with the capacity to recall from memory.
Full report via Dementia Today: