Carers' Corner
We all need a little break sometime. Kick back, relax and chat amongst yourselves in this group.
New member - help please
Hi there, I'm a new member. My husband and I are carers, but work full-time. I'm really interested in finding a reliable care worker/company that can help look after a loved one with dementia during the day time (still in her own home and we wish to keep it that way for as long as is safely possible for her). If you have any good contacts/recommended carers in the South Cheshire area I'd really appreciate it.
Thanks
GGillies
The dreams that can be an early sign of dementia:
Middle-aged men who physically act out their dreams while asleep are five times more likely to develop dementia, researchers have found.
Moving around, walking, talking or hitting out while asleep is the strongest predictor that a man will develop dementia with Lewy bodies – the second most common form of dementia in the elderly after Alzheimer's.
Another example would be unconsciously mimicking the action of holding a steering wheel while dreaming about driving a car.
Physically acting out dreams is a condition known as rapid eye movement (REM) sleep behaviour disorder.
Dementia, I feel robbed
My story began four years ago, maybe five when I think about it. George started doing strange things such as writing his hours in his work books with a pencil with a rubber on rather than a pen so he could rub out his mistakes, going in on the wrong days for his shifts on the railway, not knowing places I asked him to take me in the car that he had always known the way too. ..
Alzheimer's Society continues:
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=...
Are you missing out on NHS cash to pay care home fees?
Nine years ago, at the age of 81, George Spencer had a massive stroke that left him in need of round-the-clock care.
He is unaware of his surroundings and unable to communicate; he is fed and medicated through a tube because he can’t swallow, is doubly incontinent, at high risk of pressure sores, and in constant danger of suffocating, choking, falling out of bed or slipping from his bath chair. He is largely bed-bound, and staff in his Suffolk nursing home use a hoist to move him.
The Telegraph take up the report:
Funding of £164m to Care for Long Term
From April, there will be changes to the GP contract to redirct £164 million funding from routine office functions such as record keeping, and going directly to caring and monitoring long term conditions and assessing patients at risk of dementia.
Support Solutions report:
http://www.supportsolutions.co.uk/blog/funding/post/funding_of_164m_to_c...
Keeping active and staying involved
As a person's dementia develops, it is likely to have an impact on some of their abilities but there will still be lots that the person can enjoy doing, both individually and with others. Maintaining existing skills, as far as possible, can give the person pleasure and boost their confidence. For this reason, it is important to help them find activities that they enjoy doing, and to continually adapt them to meet the person's changing interests and needs, throughout the illness.
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=90
Dementia can steal ability to discern flavors
People with dementia can lose their capacity to understand sights, sounds and words. And in some cases, the condition can also take away the meaning of flavors, a new study suggests.
Those with a specific type of dementia, called semantic dementia, have a harder time identifying flavors and determining whether a certain flavor combination would generally be considered unusual, the researchers found.
From across the Pond NBC news:
http://www.nbcnews.com/id/37155626/ns/health-alzheimers_disease#.UUDC34w...
New survey to gather views of carers of people with dementia
The following request comes from Carers Trust:
We are inviting any person who cares for someone with dementia to complete our survey — part of a new research project to help us understand this group’s needs and improve future services for them.
The survey coincides with a dementia roundtable event hosted today (7th March) by Carers Trust and Alzheimer’s Society and attended by Carers Trust President HRH The Princess Royal.
A strong message from the event was that despite ever-increasing demands, carers for people with dementia feel strongly that their needs are not being recognised.
New money guide launched for dementia sufferers
A new guide to help people suffering with dementia and their carers deal with personal finances has been launched today.
The guide marks the start of an inititaive between Lloyds Banking Group and Alzheimer's Society and Alzheimer Scotland in which they plan to find ways to make the banking sector more 'dementia friendly'.
Today's launch is a first step by the partners to encourage people living with dementia, their family members and carers to think about what they need to do to future-proof the management of their finances.
Your Money take up the report here:
Cheshire East - Healthwatch
Use your voice to improve local health & social care services in Cheshire East by joining Healthwatch. You may want to help sign-post people to appropriate services, keep up-to-date with recent healthcare developments, or voice your opinion on board meetings.
Email healthwatchce@cvsce.org.uk for further information
Rally Round
Organise jobs and helpers…FREE resource
If someone is frail, living with dementia, recovering from cancer or a stroke or simply 'off their legs' for a while Rally Round can help…
Living with dementia magazine March 2013
Alzheimer's Society monthly magazine available now via Pdf download.
http://alzheimers.org.uk/site/scripts/download_info.php?fileID=1631
Alzheimer’s Sufferers May Function Better With Less Visual Clutter
Psychologists at the University of Toronto and the Georgia Institute of Technology — commonly known as Georgia Tech — have shown that an individual’s inability to recognize once-familiar faces and objects may have as much to do with difficulty perceiving their distinct features as it does with the capacity to recall from memory.
Full report via Dementia Today:
http://www.dementiatoday.com/alzheimers-sufferers-may-function-better-wi...
Speech “Gone” Due to Alzheimer’s Returns After Starting Coconut Oil
Coconut oil is in the news again...
I know some of our members have used it, would be interesting to see if you have any comments on this report?
http://coconutoil.com/speech-gone-due-to-alzheimers-returns-after-starti...
How can The MedicAlert Foundation help?
If you or a member of your family are diagnosed with Alzheimer's Disease, it can be a stressful and worrying time. It can put the whole family under pressure emotionally and financially. MedicAlert help to give you and your family peace of mind adjusting to life after a diagnosis. We will store a detailed medical record about the condition, history, medication as well as emergency contact details.
Using ICT in activities for people with dementia
Hi all, though most of you are not managers of a care facility, I think this is worth sharing...
This is a short introduction to using information and communication technology (ICT) in activities for people with dementia. It is aimed at managers and staff in the care sector, and those who organise activities for people with dementia. It's a plain language guide about using mainstream technologies - you don't need to be technically minded. We hope it will be useful for you whether you are new to this topic or already have some experience of using ICTs in dementia support.
Another chance to hear Shelagh Fogarty's debate..
Does the way we diagnose and care for people with dementia need to change? Another chance to hear Shelagh Fogarty's debate from earlier in the week.
Via BBC:
http://www.bbc.co.uk/iplayer/episode/b01r3x5h/Shelagh_Fogarty_17_02_2013/
Can you help develop a new Dementia Portal for the NHS NW?
Age UK Cheshire, on behalf of the North West NHS would like to know if any of our members are interested in trialling a new website which is currently under construction. Diane, your community manager, is meeting fortnightly with NHS to help develop this brand new facility for all living with dementia, and those that want to capture their own memories. If you feel you would like to help we are looking for volunteers willing to travel to the Hartford (Northwich office) on Friday 22nd February 10.30 - 12.00pm within our training suite.
Please let me know if you can help.
Thank you !
Carers Personal Budget - Cheshire Carers Centre - Cheshire East
What is a Carers Personal Budget?
A carers personal budget is an amount of money awarded to allow you to have a break from your caring role. You could be given between £200 and £500 to spend over six months if you are successful, choosing how and where this is spent. You could use this to spend on smaller breaks such as going our for meals, or on one larger break - you decide what helps you. The carers personal budget is not means tested and is available to carers in the Cheshire East area.
Training for Carers - Cheshire East
Also, thanks again to Fifty Plus Network for supplying the following information from Crossroads Care Cheshire East:
Training for Carers
Crossroads Care Cheshire East has been awarded funding to provide carers with free training sessions on a variety of topics all useful to their caring role. The training sessions are running in February and March 2013 at Overton House, West Street, Congleton.
Carers are welcome to ‘pick and choose’ from the range of sessions, attending as many or as few as they like. The sessions will cover the following topics:
